Charmaine Ferriggi had a healthy pregnancy – like others before and after her, she had been told not to worry much about genetic diseases as they happened to one person in a million.
“Who would have told me that that one person would be our daughter Kate? The odds of Kate’s condition are one in seven million… I don’t regret it one bit, but you can never think that it won’t happen to you,” her mother told Times of Malta as the four-year-old cuddled up next to her, tapping a tambourine.
Kate suffers from a rare genetic disorder for which there is no cure: Tatton Brown Rahman Syndrome.
She needs three to four hours of therapy every day, costing €2,500 a month. Her parents are now seeking to purchase a robotic aid training system, and they need help.
