I never though I would do a video speaking of my illness like that ...
But since I met other people with rare diseases like mine, I took the occasion to do it .

So, my illness's name is "Familial Adenomatous Polyposis". A long name for a shitty disease.

1 person on (approximately ) 20 000 to 40 000 is touched by this (Yes, I can play loto and win it at this point).

This disease touches all the body but mainly the digestive organs, by making some small buttons of flesh, calling polyps. The more there is, the more they can turn cancerous, and the faster I can die from intestines cancer before my 40s. Because yes, the most dangerous are in the intestines, that's why they removed mine 2 years ago when I was 17.

Mainly this disease just gets caught by one of the parents, but one of the genes can mute and make the disease appear.

In general, it doesn't hurt. Well the digestive system doesn't hurt (unless I forgot my medicines). Because, like I said at the top, it touches the WHOLE body. My bones got malformation, and that's what hurt and made me not concentrate. For example, the back of my ears are like the moon surface (that's how my mom discovers that I got the same disease as her), or the top of my face, if you touch it, you can feel like the start of a demon's horns.
Also, there is the bleeding time. I remember having a bleeding nose easily when I was in school at lunch time. It wasn't a small one, it usually was going to 30 minutes to 6-7 hours. (I got my own place with the people working there and I was their favorite UvU ✨)

There is also another thing that is special for this disease, is that ... We have a black spot on the back of the eyes ... Where the nerves are... I'm not joking 🤣

But this video shows mainly the two years that follow my operation. When your body, refuses to heal, or just to digest correctly, it ends up like a virus hitting you. Those are the times where I feel weak, and not many people have seen me like that in real life.

So yeah ... There is no real symptoms for this illness...

But don't worry guys ! I'm fine !
I swear ^^`

It's one of the reasons why I don't post that much, with the apprentice jobs TvT

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