The government has released plans for the UK Rare Disease Framework, covering awareness, co-ordination of care and access to therapies. Nick Meade, Genetic Alliance UK’s Joint Interim Chief Executive and Director of Policy, joins the programme to discuss priorities surrounding rare conditions, genetic sequencing and the importance of a good diagnosis.
To watch the full programme, please visit raredisease.org.uk/rdd2022/light-on-rare
Rare Disease UK is the official organiser of Rare Disease Day in the UK. It is a campaign run by the charity Genetic Alliance UK, the largest alliance of organisations supporting everyone affected by genetic, rare and undiagnosed conditions in the UK.
#LightOnRare #RareDiseases #RareDiseaseDay2022
