During the 2024 ADEM Together online event, Krissy Dilger of SRNA was joined by Dr. Cindy Wang of University of Texas Southwestern Medical Center. Dr. Wang provided a comprehensive overview of acute disseminated encephalomyelitis (ADEM) diagnosis and symptoms [00:00:50]. She addressed long-term effects, emphasizing the importance of short-term response to treatment and potential complications [00:09:35]. The discussion included the impact on children versus adults, considering aspects such as visual and mobility impairments as well as cognitive issues [00:15:24]. Dr. Wang also covered pain management strategies, both medication-based and natural, alongside the importance of multidisciplinary care in improving quality of life for ADEM patients [00:25:00]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
Dr. Cynthia Wang received her medical degree from University of Texas Southwestern Medical Center in Dallas, Texas and completed a pediatrics and pediatric neurology residency at Mott Children’s Hospital, University of Michigan Health System in Ann Arbor, Michigan. Dr. Wang completed her James T. Lubin Fellowship under the mentorship of Dr. Benjamin Greenberg at The University of Texas Southwestern and Children’s Health. Her research study was a prospective, longitudinal study on acute disseminated encephalomyelitis (ADEM) to identify the clinical characteristics, treatment methods, and follow-up interventions that are associated with better and worse patient-centered outcomes.
00:00 Introduction and Welcome
00:45 Overview of Acute Disseminated Encephalomyelitis (ADEM)
02:47 Long-term Effects of ADEM
05:53 Challenges for Children vs. Adults with ADEM
08:06 Managing Pain in ADEM
10:30 Non-Medication Approaches to ADEM
14:57 Research and Future Directions in ADEM
18:41 Testing and Diagnosis of ADEM
23:47 Treatment and Recovery
29:35 Adult vs. Child ADEM
34:26 Conclusion and Final Thoughts
